The Ted fund is ONE!

You play many roles as a special needs parent. As well as the usual daughter, wife, friend, auntie, mother types, you become an advocate, an adviser, a therapist – and, in cases like ours, a fundraiser too. Talking about money is very un-British, let alone asking people for it to help take care of your …

The one where Ted has surgery

If you follow us on Facebook (www.facebook.com/TreatmentForTed) you'll have noticed that Ted had surgery on his wonky eyes two weeks ago. It was quite an experience! He was brilliant in the hospital, and totally won the heart of Jacob, the nurse who was looking after us, with his smiles. It broke my heart to put him …

A fete accompli

Do you see what I did there? Yes, it's a terrible pun, but what's the point of having a blog if I can't use the kind of headlines I would never get away with at work? A month on - do you see a theme developing on this blog? Who'd have thought my entire career …

Happy birthday Ted!

I think most parents do a lot of 'This time last year...' on their kids' birthdays. Especially on first birthdays. I can imagine there's a lot of checking of watches, daydreaming, thinking about how it felt arriving at the labour ward, or lying in the birthing pool, chock-full of anticipation (and pain) or the reliving …

Where to begin?

The trouble with not blogging regularly is that by the time six months have passed there's SO much to say it's hard to know where to start. It's been a seemingly endless summer (until about a week ago, at least), of which I will spare you a blow-by-blow account. Not that my brain would remember …

Haines family catchphrases

There's something bonding about catchphrases. I look back fondly at my school years and the obsession my then-best-friends and I had with the likes of River Phoenix, Winona Ryder and Christian Slater. We'd waste A LOT of time messing around, quoting lines from Lost Boys or Heathers as some sort of in-joke. By the time …