I first created this page when Ted was five months old and I have never updated it (please read on for older updates and the basic story of Ted’s start in life).
Ted is now 2 years and 3 months, so I think it’s about time I showed you what he looks like now…He’s looking well, don’t you think? When I look back on photos of the early days with his skinny body and his teeny tiny pea head, I can see just how far he has come. We all have but below is where we started from…
This is Ted. He’s a happy little chap, isn’t he? Maybe it’s the dungarees. Dungarees make me happy, although I can’t wear them without looking very dodgy so I leave it to him.
Ted is five months old and he’s a very special little man. Ted was born on 7 October 2012 in a birth that really didn’t end as promisingly as it started. After I’d nurtured him for 41 weeks and 5 days, he came out of me floppy and blue, with the cord twice round his neck, not breathing and with no heart rate. He was taken away from me immediately and within hours transferred to St Thomas’ hospital.
At Tommy’s he spent 72 hours in intensive care being ‘cooled’ – his body temperature was lowered to help his brain recover and to boost his chance of survival. During his four weeks in NICU and SCBU Ted had seizures, kidney failure, suspected meningitis, feeding problems… He underwent an EEG, a lumbar puncture and an MRI before finally being allowed home with a feeding tube to the care of two very scared and very traumatised new parents.
The MRI scan showed scarring on his brain, which we’ve since found out is indicative of spastic quadriplegic cerebral palsy and poor brain growth. With motor development problems and predicted severe learning difficulties, we soon realised tough times that marked his entry to the world are going to be a part of our lives for many years to come.
The good news is we still have him. He’s a daily joy and a daily challenge and who knows what the future holds for him. All we know is that we want to make it bright and hopeful and prove the doctors wrong when they tell us he won’t achieve the things most parents take for granted when bringing up a child.
Through this blog and our fundraising efforts we hope that we can make it happen