Savouring the moment

My name is Ted and I love to sleep - I get my best naps on my mum. When I'm alone I can't stay asleep for long. It's not as warm and cosy, I don't feel as safe and I just miss hearing mum's heartbeat. That's what I imagine goes through his head anyway. And …

Advertisements

Time to toughen up

My dad always used to tell me I was too sensitive. Part of me was quite proud of that if I'm honest. it appealed to my angry, angsty, oh-so-misunderstood teenage self. But the days of being a delicate flower are over. I'll never get through this if I don't toughen up. Although it's getting easier …

Living in limbo

I'm in a funny place at the moment. Having a diagnosis so early is tough. It's very difficult to face the fact that your child could be severely disabled and (the killer) mentally retarded. Funnily enough that takes the shine off the babymoon pretty quickly. Yet if I didn't have it, I'd be worrying even …

Bath face!

One of the questions I get asked a lot is, 'Does Ted like the bath?' People are *very* interested in this. As he's not yet a giggler and definitely not a splasher, the only indication of his enjoyment is that he doesn't cry. Definite bonus. You can also tell by his face. We don't get …

The n-word

Today we're seeing Ted's neonatologist. I've been dreading this appointment for weeks. So far we've only had two follow ups but they've both gone like this: arrive feeling optimistic that Ted's doing well. Come out feeling heavy hearted because you've been told the very news you really didn't want to hear. Still, can it get …